parkinsons disease

Parkinson’s. . Well where do I start by Clare Lindley

Written by SLTPD Member Clare Lindley who kindly allowed me to publish, with many thanks to her for this great insightful, uplifting yet very real piece.  Parkinson's disease (PD)- well where do I start. I was diagnosed at age 30 and it broke my heart. Some dark days then followed and the tears they came… Continue reading Parkinson’s. . Well where do I start by Clare Lindley

parkinsons disease

Pure imagination . . . Living there you’ll be free

If you've ever seen the musical version of Ronald Dahl's Charlie and the Chocolate Factory then "Pure imagination' is the song Willy Wonka sings as he greets his motley crew of different shaped and sized guests (ok with varying attitude problems apart from the loveable Charlie. . . Of course!) So what on earth does… Continue reading Pure imagination . . . Living there you’ll be free

parkinsons disease

Health Services Co-ordinator

I was diagnosed with Parkinson’s 11 years ago and I didn’t realise at the time but I was also being appointed a Health Services Co-ordinator. I guess it must have been hidden somewhere in the small print. It is an extremely responsible worthwhile job but it is unpaid.   There are some good and excellent… Continue reading Health Services Co-ordinator

#Parkinsons, Chronic illness


Hello there, I would like to thank Heidi very much for asking me to share my blogging & journey with you. I'm very grateful to be asked to be a contribute my blogs to our lovely group. This may sound strange, but introducing myself is something I would never have dreamt of doing until I… Continue reading GETTING TO KNOW ME

parkinsons disease

2018 A Blank Canvas . .

You have a whole year stretched out in front of you. How will you fill it? I'm sure you've made some resolutions or pledges of change, out with the old. Maybe just hope of a good or better year. Well is your canvas! You wake to it each day. . . What will you change… Continue reading 2018 A Blank Canvas . .

parkinsons disease

Teamwork and Parkinson’s

Heidi invited me to be part of the SLTPD Blog and I had to think about it. To Blog or not to Blog that is the question? I already write my own blog at . My blog is a Parkinson’s blog yet it doesn’t always mention Parkinson’s. The idea is it shows that even… Continue reading Teamwork and Parkinson’s

parkinsons disease

‘‘Twas the . . Oh it’s Christmas Day yay

Seriously though Christmas can be a stressful one for most chuck Mr P in the mix and anything could happen. You see we are hidden, most of us going about our business looking just like you. . Then suddenly we're at the checkout and for some reason there seems to be a competition on. How… Continue reading ‘‘Twas the . . Oh it’s Christmas Day yay

parkinsons disease

Meet BobbleHead Nanna our resident Aussie Artist!

When I called in to Bodyworks shop/small gym in November 2016, something fantastic was put into motion and I’m very grateful for whatever it was that made me decide to chose THAT gym at THAT time to enquire about “Boxing for Parkinson’s”. As Person with Parkinson’s, I was acutely aware of the need to […] via… Continue reading Meet BobbleHead Nanna our resident Aussie Artist!

parkinsons disease



This seems to be my default look. I remember the comments of my latin teacher years ago. For most of my first year with him he thought I didn’t understand then was surprised at my good marks in the end of year exam.

With Parkinson’s your face can become less expressive  and people can make assumptions. Look a bit confused if so life can act as a confusion multiplier and make it worse. I went to the cinema recently and just before the film I took a comfort break  and as I returned to the film I must have looked puzzled, because as I tried to re-enter the film the attendant stopped me and said I was going  back to  the wrong screen. Confused I tried to reply but all I managed to say was “Murder” and luckily she realised that was me trying to tell her which film I…

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